I haven’t peed for 8 YEARS, it’s agony and could kill me – my stomach bulges like it’s about to burst but I can’t go

A WOMAN has been incapable to pee people for 8 years owed uncommon condition.

Tia Castle, 31, hadn’t been to the toilet successful days erstwhile her tummy began to uncomfortably swell.

Quickly, the symptom became “unbearable” and unaware of what was going on, she rushed to the hospital.

While there, she was told sepsis had developed successful her urinary tract owed to a shocking 2 litres of h2o being retained successful her assemblage –with nary release.

Facing a precocious hazard of the corruption worsening, the erstwhile attraction location idiosyncratic had to manually marque herself spell to the toilet each time for the next 9 months utilizing a catheter.

Since then, she’s been diagnosed with a uncommon information known arsenic Fowler’s Syndrome – and hasn’t been capable to wee people for 8 years.

“I was successful implicit agonising pain, but nary substance however hard I tried, I conscionable couldn’t spell to the toilet,” Tia, from Glasgow, Scotland, said.

“I drank truthful overmuch h2o to effort and unit my assemblage to merchandise immoderate of the retention – but this lone kept gathering up.

“In the past 8 years, I haven’t passed a driblet of urine naturally.

“And it’s near maine devastated and feeling fed up to cognize my beingness is connected the enactment regularly due to the fact that of this.

“Had I not gone to the infirmary erstwhile I did, who knows if I would inactive beryllium present today?

“It’s each travel arsenic a existent shock, arsenic I ne'er person the impulse to spell to the toilet, yet my tummy bulges similar it’s astir to burst.

“I person missed retired connected truthful overmuch and had everything I erstwhile knew taken distant from me.

“There’s inactive truthful overmuch I privation to bash successful life, but close now, that seems impossible.”

Growing up, Tia had dealt with respective urinary tract and kidney infections, to the constituent her close kidney had to beryllium removed.

She besides suffered often with nonaccomplishment of sensation successful her bladder and “intense” bladder spams, which wrecked her sleep.

Tia was “losing hope” until a person brought up Fowler’s Syndrome, noting that her symptoms could beryllium signs of it.

In 2016, she visited her doctors, who referred her to urology for further investigating – but earlier her appointment, she was admitted to infirmary with sepsis.

She past had to acquisition galore surgeries successful bid to beryllium fitted with imperishable catheters crossed her body, arsenic peeing people for harder and harder to do.

Left practically housebound, she sought retired an authoritative diagnosis; and successful 2017, this was confirmed.

Fowler’s Syndrome, which was lone discovered successful 1985, makes it hard to walk urine, starring to retention and accrued hazard of infection.

It's caused by the sphincter musculus successful the bladder being incapable to relax.

It affects 2 successful each 1 cardinal women, according to Clinisupplies, who specialise successful bladder and bowel products.

While relieved to yet person an answer, Tia was “devastated” to larn that her information was incurable.

She said: “I was truthful scared, arsenic I didn’t cognize what was adjacent for maine – and if I’d ever get help.

“Doctors tried assorted treatments, including wires inserted into the basal of my spine to stimulate the nerves successful my bladder.

“I was adjacent offered country to region portion of my bladder, truthful that a caller way would beryllium created for the urine to flow.

“But sadly, thing worked.

“Each time was filled with a changeless dread of the excruciating symptom washing implicit me.

“My full beingness was enactment connected hold, arsenic I was near furniture bound and inactive with chronic infections.

“As I was truthful young, and my information is truthful rare, I felt isolated, due to the fact that determination was nary 1 to crook to.”

'You're not alone'

Then, successful May 2022, she decided capable was enough.

Tia made the brave, life-changing determination to person her bladder removed wholly and person a stoma fitted.

Now, though she’s inactive struggling with changeless “out of control” infections – and is processing absorption to antibiotics, making them harder to dainty – it’s granted her a “new lease of life”.

Currently, determination are experimental vaccine trials available, which she has conscionable started, alongside receiving enactment from the Fowler’s Syndrome UK charity.

For now, though, she’s thankful to beryllium live and sharing her communicative to pass others.

She added: “I’m incapable to bask life, arsenic astir of it has been spent warring for it.

“I conscionable privation I was good capable to permission the house.

“Right now, I americium precise stressed, beauteous poorly, doing my champion to enactment retired of infirmary – and bored retired of my mind, arsenic I’ve been stuck connected furniture rest.

“But I’m hopeful these experimental vaccines volition work, arsenic this is my past option.

“Now, I privation to get immoderate items connected my bucket database ticked disconnected portion I’m inactive capable to bash so.

“Even though I person nary bladder and 1 kidney with dropping function, I americium truthful hopeless [to marque memories].

“I privation to archer my story, truthful anyone other with Fowler’s Syndrome knows they are not alone.

“There are truthful galore [people] retired determination struggling, truthful if I tin assistance 1 person, I’ll beryllium happy.

“And for those with stoma; remember, there’s thing to beryllium ashamed of.

“It’s the lone crushed I’m inactive live today.”