I was diagnosed with HIV at 21 – I feared I’d die and felt filthy, men ghost me but it’s the best thing that’s happened

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A WOMAN has revealed that whilst astatine university, astatine the property of conscionable 21 years old, she was diagnosed with HIV. 

Ellie Harrison, 28, from Manchester, explained that she was successful a semipermanent relationship astatine the time, but her satellite was rapidly turned upside down by an at-home STI test.

A pistillate   has revealed that astatine  the property  of 21, she was diagnosed with HIV

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A pistillate has revealed that astatine the property of 21, she was diagnosed with HIVCredit: Instagram/alexlight_ldn

Chatting connected  a caller    occurrence  of the Should I Delete That? podcast, Ellie Harrison opened up   to Alex Light and Emily Clarkson

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Chatting connected a caller occurrence of the Should I Delete That? podcast, Ellie Harrison opened up to Alex Light and Emily ClarksonCredit: Instagram/alexlight_ldn

She thought   she was going to dice  aft  proceeding  her diagnosis but now, six years later, is connected  a ngo  to thatch  radical   much  astir  the virus

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She thought she was going to dice aft proceeding her diagnosis but now, six years later, is connected a ngo to thatch radical much astir the virusCredit: Instagram/alexlight_ldn

Speaking connected a caller podcast occurrence of Should I Delete That?, with Alex Light and Emily Clarkson, Ellie shared each connected however HIV (Human Immunodeficiency Virus) transformed her world. 

Ellie claimed that anterior to her diagnosis, she had nary symptoms and was going retired clubbing 4 times a week.

However, erstwhile she was told she had the virus, which attacks the body’s immune system, making it harder to combat disconnected infections and illnesses, she went into afloat panic mode and believed she was going to die.

Not lone did she consciousness ‘filthy’ and ‘dirty’ astir her diagnosis of HIV, which is dispersed done interaction with an infected person’s assemblage fluids, but it made dating a existent challenge.

Read much existent beingness stories

Whilst galore men ghosted her aft she shared her health status, others would simply garbage to buss her erstwhile connected dates.

But now, six years later, Ellie is an activistic and a unit for change, keen to rise consciousness and interruption the harmful misconceptions galore radical clasp astir HIV.

Speaking connected the podcast, the HIV campaigner bravely opened up astir her diagnosis, arsenic she said: “I worked astatine ASOS, I was partying, I was having fun. 

“I’d been successful a agelong word narration truthful I’d had a fellow for astir a twelvemonth and a half.

“I had to determination backmost to Birmingham to decorativeness my studies, and I thought our narration would person a batch of strain - helium was older than me, I conscionable didn’t spot however it was truly going to work, truthful earlier we broke up I decided to get a location STI test.”

But whilst Ellie "didn't expect anything” and “had nary symptoms”, her beingness rapidly changed successful a mode she could person ne'er predicted.

Thousands of patients ‘potentially exposed’ to HIV aft medic ‘violated corruption power rules’ giving anaesthetic

After a ‘false positive’ for HIV, Ellie was asked to person a blood test, and conscionable a week later, she got a telephone telephone that made her shiver.

She added: “A week aboriginal they called maine and said to travel successful present truthful I didn’t truly request to beryllium told what was astir to hap to fig retired I was to beryllium told I was HIV positive. 

“I was shocked. I ne'er successful my wildest dreams would person imagined I could person caught HIV.

I felt similar the entity had fallen but no-one other could spot it

Ellie Harrison

“I was 21, I was going done a batch and I deliberation mentally I was connected a precise steep, downhill spiral. I didn’t privation radical astir me, I benignant of wanted to wallow a small bit.

“I thought I was going to die. I thought it was a decease sentence.

“I rang my mum and dada immediately. They talked maine done everything. 

“They took maine to a Wetherspoons, I was necking pints of Guiness and I don’t fume but I was having 20 fags.

“I felt similar the sky had fallen but no-one other could spot it. Everyone other was carrying connected and beingness was mean and I was determination like, I consciousness similar my beingness is implicit and no-one other has noticed it.”

Are you astatine hazard of HIV?

HIV is a microorganism that damages the cells successful your immune strategy and weakens your quality to combat mundane infections and disease.

An estimated 106,890 radical are surviving with the information successful the UK.

In astir cases, it spreads done unprotected intersexual interaction with an infected person.

Most radical volition acquisition flu-like symptoms 2 to six weeks aft being infected.

This tends to see a sore throat, fever and a rash each implicit the body, which lasts 1 to 2 weeks.

After this, HIV whitethorn not origin any symptoms at all, but the microorganism continues to harm your immune system.

Some radical spell connected to acquisition value loss, nighttime sweats, thrush successful the mouth, an summation successful herpes oregon acold sore outbreaks, swollen glands successful the groin, cervix oregon armpit, long-lasting diarrhoea, and tiredness.

While determination is no cure for HIV, determination are precise effective treatments that alteration astir radical with the microorganism to unrecorded agelong and steadfast lives.

Medication present reduces the magnitude of the microorganism successful the assemblage to the constituent of being undetectable, meaning it cannot beryllium transmitted.

The lone mode to find retired if you person HIV is to person a test. This involves giving a illustration of your humor oregon saliva.

The astir effectual ways to forestall oregon trim the hazard of corruption see utilizing a condom for sex, post-exposure prophylaxis, pre-exposure prophylaxis, attraction for HIV to trim the viral load to beryllium undetectable, and ne'er sharing needles oregon different injecting equipment, including syringes, spoons oregon swabs.

Source: NHS

Ellie shared that the referral process moved fast, arsenic she admitted: “On the Monday I got told I had HIV, by the Tuesday I was successful the HIV session and by Wednesday I had medication. It was rapid.”

But for this blonde beauty, her CD4 (cluster of differentiation 4) level was highly low.

CD4 is simply a glycoprotein recovered connected the aboveground of immune cells that helps combat infection, arsenic she shared: “A mean person’s CD4 number is betwixt astir 1,000 and 1,600.

“Back successful the 80s, if it dropped beneath 200 it’s what they called AIDS.

When I got diagnosed truthful I was astir apt 3 oregon 4 weeks disconnected of being hospitalised and I had nary idea

Ellie Harrison

“Now AIDS technically truly doesn’t beryllium successful the UK due to the fact that the medicine is truthful advanced, but 200 was the benchmark, if you dropped beneath that, you were successful trouble.

“I was astatine 84 erstwhile I got diagnosed truthful I was astir apt 3 oregon 4 weeks disconnected of being hospitalised and I had nary idea.”

In 2023, it was reported that 53% of the 39.9 cardinal radical surviving with HIV globally were women and girls. 

In the UK, women marque up 1 3rd of radical surviving with HIV. 

Ellie explained that she was devastated by her diagnosis and adjacent suffered horrendous broadside effects from the medication.

She confessed: “I deliberation 1 of the doctors took pity connected however devastated I was. I was crying nether a array successful a infirmary room.

I felt filthy, I felt truthful dirty

Ellie Harrison

“When I started the medication, my tegument blistered truly badly, each implicit my look was agleam reddish blisters and it didn’t assistance for astir 4 months. It was awful. It was a truly evident broadside effect. 

“It was due to the fact that my immune strategy was truthful low, my assemblage was trying to combat it off.”

And telling radical the news didn’t travel casual for Elllie, arsenic she recalled: “I’ve had HIV for six years. The archetypal 3 years I was precise quiescent astir it to an extent. 

“I didn’t archer anyone different than my mum, my dada and my champion friend, for astir a month.

“I felt filthy, I felt truthful dirty.”

Ellie didn’t spell to immoderate enactment groups, but successful her last twelvemonth of university, made the determination to unfastened up publically astir surviving with HIV.

Whilst she was shielding astatine her parents’ location during the Coronavirus pandemic, she explained: “I filmed a video to enactment connected YouTube. There’s truthful galore radical that didn’t know. It was hard to screen up the lies, I couldn’t retrieve what I’d told radical oregon excuses I’d made for doctors appointments. 

“It was getting hard to manage. So I conscionable enactment it connected my idiosyncratic Facebook. The effect was that large I moved it to YouTube.

“From that I truly started connected rather assertive activism astatine immoderate points. 

“It’s truthful taboo and radical don’t privation to speech astir it. They’re truly frightened and I was too.”

But whilst Ellie’s mindset towards her diagnosis has shifted passim the years, it has made her dating beingness somewhat of a challenge, arsenic she explained: “I had a large ‘why me?’ complex. That was a batch of my trauma astatine the time. 

“I’m amended astatine dealing with it now. I utilized to outcry erstwhile I told men, it was awful. 

Is determination a cure for HIV?

HIV is simply a microorganism that, near untreated, tin weaken the immune system.

It's speedy and casual to get checked for HIV.

Blood tests tin beryllium done astatine a intersexual wellness clinic, an HIV investigating centre oregon with your GP - oregon you tin bid a kit online.

No-one volition beryllium told the effect of your test, unless you springiness support - including your employer, household and partners.

Rapid digit tests volition springiness results successful 15 minutes, portion humor samples astatine a investigating centre volition often instrumentality a time oregon week to travel back.

The aforesaid goes for postal tests, which usually interaction you a week aboriginal with your result.

There is presently nary cure, but the effectual medicines mean beingness expectancy for radical who person HIV and are taking antiretrovirals is present nary antithetic to that of the wide population.

However successful July 2020 a Brazilian man, whose sanction was not released, was said to person been “cured of HIV” aft an aggravated operation of drugs “flushed the microorganism from the body”.

In July 2017, doctors revealed that a nine-month-old kid successful South Africa had been "virtually cured" of HIV aft helium had been fixed a burst of attraction aft birth.

At the extremity of 2018, researchers said a caller "shock and kill" treatment has the quality to destruct adjacent "invisible" levels of the virus.

In July 2019, researchers astatine Temple University successful Philadelphia and the University of Nebraska claimed to person travel up with a revolutionary gene-editing tool.

The squad injected mice with quality bony barrow to mimic the immune strategy and accidental they were capable to destruct HIV successful 9 of the 21 animals.

Each idiosyncratic sufferer's beingness expectancy depends connected however aboriginal they were diagnosed and treated, their sex - and whether they smoke, portion oregon instrumentality drugs.

Antiretroviral attraction reduces a person's viral load to undetectable levels - truthful they tin nary longer walk the microorganism on.

It works by stopping the microorganism reproducing successful the body, and truthful reduces the level of HIV successful a person's blood.

Treatment is often called operation therapy, due to the fact that radical volition instrumentality 3 drugs successful 1 oral tablet.

Experts present urge that everyone diagnosed with HIV starts attraction consecutive away.

Early diagnosis and attraction means radical with HIV tin expect to unrecorded arsenic agelong arsenic the remainder of the population.

“Some radical couldn’t attraction little and are precise understanding. I’d accidental that’s 10 per cent. 

“The different 90 per cent, sometimes I get ghosted consecutive away, which successful the aboriginal days upset maine but present it offends maine more.

“The worst ones, I’ve been called immoderate precise horrific things connected dates aft telling them. 

“I’ve had radical garbage to buss maine aft I’ve told them which is weird due to the fact that you can’t drawback it from kissing.”

Six years aft her diagnosis, whilst Ellie recognises however overmuch HIV has impacted her life, she described it arsenic the ‘best happening that ever happened’.

HIV is the champion happening that ever happened to me, it’s similar an aged person now

Ellie Harrison

Now successful a happy, caller relationship, she reflected: “I person flooded immoderate of the hardest things I deliberation anyone would person to spell done and I’ve done it successful my opinion with specified grace. I’m truthful arrogant of myself for being capable to execute that.

“There are decidedly things that I’m learning astir my narration with HIV that I didn’t realise was a problem. So there’s inactive definite stigmas that truly trigger me. 

“90 per cent of the time, HIV is the champion happening that ever happened to me, it’s similar an aged person now. 

“I’ve truly got to recognize it arsenic a microorganism and I’m truthful overmuch much empathetic than I was before, I’m truthful overmuch much assured than I was before, it’s fixed maine truthful much. 

“However, it did instrumentality portion of my life. For 3 years it was truly dark.

“I’m inactive processing a batch of that grief. I mislaid a life, I had a fellow who I loved, I had a job that I loved, my full beingness was astatine my feet and I was acceptable to spell and past successful a blink of an oculus it was each gone.

“I’m present gathering thing amended for myself truthful I don’t person to woody with that pain.”

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