'My daughter has rare blood condition and could die without a stem cell donor'

Medics astatine London’s Great Ormond Street Hospital accidental Amilah - who has aplastic anaemia - needs a stem compartment transplant, but determination is not presently a lucifer connected the register

The mum of a small miss with a perchance fatal humor upset has made an affectional plea for much stem cell donors to travel forward.

Mobeen Hussain’s nine-year-old girl Amilah was diagnosed with aplastic anaemia earlier this year. The uncommon information occurs erstwhile bony marrow cannot marque capable caller humor cells. This makes it harder for the assemblage to combat infection, halt bleeding and transportation oxygen.

Medics astatine London’s Great Ormond Street Hospital accidental Amilah needs a stem compartment transplant, but determination is not presently a lucifer connected the register. Mobeen, 42, said: “When we were told Amilah’s diagnosis, they said the lone cure was a stem compartment transplant. It needed to beryllium treated soon and would beryllium amended erstwhile Amilah is good due to the fact that she’d marque a truly bully recovery.”

With the assistance of the Anthony Nolan charity, Mobeen has launched the Amilah Means Hope run to promote 16 to 30-year-olds – peculiarly those from number taste backgrounds – to motion the stem compartment registry and donate.

As Amilah has Pakistani heritage, she is little apt to find a donor connected UK registers. Mobeen added: “The wide consciousness is conscionable not there. Knowing it volition beryllium hard for Amilah to find a donor makes maine privation to bash something.”

A transplant would present steadfast stem cells into Amilah’s bloodstream to assistance her assemblage turn and nutrient caller humor cells connected its own. It would let Amilah – which means anticipation successful Arabic – to get backmost to her hobbies of equine riding and karate.

Mobeen said: “Until this happened, I didn’t realise that this [stem compartment donation] is thing radical tin do. Stem compartment donation is giving a acquisition of life. It’s specified a precious acquisition to springiness anyone.”

The diagnosis came aft Amilah, who lives successful Horsham, West Sussex, went to the doc to analyse repeated bruising connected her shins earlier this year. Blood tests showed debased platelet counts and she was diagnosed with aplastic anaemia successful October.

Fewer than 150 radical are diagnosed with the information each twelvemonth successful the UK. It is astir communal successful radical aged 10 to 20, oregon implicit 60.

Yasmin Sheikh, caput of argumentation and nationalist affairs astatine Anthony Nolan, said: “Finding a donor for Amilah would mean giving her a 2nd accidental astatine life.”

People aged 16-30 who are successful bully wellness tin motion up to the Anthony Nolan registry here.