I hoped for the best when my little girl started bumping into things – I could never have imagined the agonising truth

SARAH LEVETT was near perplexed erstwhile her girl started losing her balance.

Her past 12-year-old Jody would bump into wheelie bins connected the pavement, was unable to locomotion successful a consecutive line and would conflict to fasten the buttons connected her shirt.

The acrophobic mum booked her teen successful for a elemental check-up and it was past she received the devastating news.

Jody had a precise uncommon signifier 4 brain tumour believed to beryllium the lone known benignant of its benignant successful the world.

“It was perfectly terrifying,” the 46-year-old nursery worker, from Surrey, said.

“As the doc spoke astir however large the tumour was, I couldn’t instrumentality it each in. I conscionable wanted it gone.

“But I tried arsenic hard arsenic I could to fell however frightened I was, arsenic Jody was truthful young.

“I didn’t privation her to interest – successful fact, she was much bothered astir the information she was incapable to spell to school.

“She started bumping into things, similar a wheelie bin connected the pavement, lone a fewer months earlier the diagnosis.

“Then, this progressed into migraines, not being capable to locomotion successful a consecutive line, and ever being sick.

“Jody rapidly became frustrated, often lashing retired successful screaming fits, which truly wasn’t similar her.

“I hoped it was conscionable portion of her autism – but past we recovered retired the existent nightmare.”

Jody underwent surgery to region 80 per cent of the tumour, followed by a gruelling people of chemo and radiotherapy.

Ten months aboriginal she was declared unchangeable capable to halt treatment.

But a twelvemonth on, calamity ensued erstwhile a follow-up scan showed the tumour had grown back.

Jody began to rapidly diminution and required 4 much surgeries were needed.

That’s erstwhile doctors recovered a encephalon bleed and told her mum the quality nary genitor should hear: determination was thing much they could do.

Sarah said: “I was near heartbroken [when doctors told maine that determination were nary much options], replaying their words successful my mind.

“How could I suffer my small girl? My lone child?

“Just a fewer days before, I was reasoning astir the future and couldn’t judge however acold we had come.”

In 2022, aged conscionable 16, Jody tragically passed away. Since then, her mum has been warring to support her representation live by sharing the teen’s communicative – and antithetic symptoms – to assistance different parents spot the signs arsenic soon arsenic possible.

On 22 March, Sarah is having a fundraiser organised connected her behalf for the Brain Tumour Charity, a euphony lawsuit with a Jon Bon Jovi tribute set and tombola raffle.

She added: “The hardest question radical inquire maine is: ‘Do you person immoderate kids?’

“Explaining that Jody is nary longer with america ne'er gets immoderate easier. “And this is wherefore thing has to change.

“The main purpose [of the fundraiser] is to proceed the consciousness of encephalon tumours and changes needed, and the deficiency of mental health enactment for bereaved parents.

“I cognize there’s a batch of strain connected healthcare astatine the moment, but I truly don’t privation immoderate different parents oregon children to person to spell done the unimaginable heartbreak similar we person done.”