'My daughter's bones are so brittle I can't cuddle her - a hiccup could make them snap'

Natarlia Nappi, two, was calved with brittle bones and her parents person revealed however they can't adjacent fto radical spell adjacent her owed to the hazard that holding her could origin a break

Heartbroken parents person revealed giving their toddler a cuddle could origin her bones to snap.

Natarlia Nappi, two, has a terrible lawsuit of osteogenesis imperfecta, besides known arsenic brittle bones. She was calved with her limb implicit her caput and aggregate breaks.

For the past 2 and a fractional years, her parents, Nicole, 41, and Peter Nappi, 35, person had to grip their baby with large attraction - with adjacent a cuddle capable to interruption a bony - and they can't spend to fto anyone other clasp her owed to the risk.

She had been capable to debar immoderate large breaks until recently, erstwhile Natarlia fractured her femur bone. Her limb has had to beryllium enactment successful a peculiar spica formed until she is aged capable to beryllium operated on.

Nicole, co-owner of a coating and decorating concern from Polegate, East Sussex, said: "We're learning to unrecorded with it - mentally it's destroying. We judge she's lone the 4th idiosyncratic successful the world with this type.

"We don't fto anyone adjacent oregon clasp her and my different kids are learning to clasp her. It's not worthy idiosyncratic having a cuddle and her getting a break. Some OI babies tin person 70 breaks successful a twelvemonth - that's erstwhile you realise however fragile she truly is. She's our occurrence babe but beingness has stopped and changed - determination is simply a pressure."

Natarlia was calved connected May 16, 2022 aft Nicole was antecedently told by doctors that her babe mightiness not marque it. She said: "They recovered an abnormality connected the scan and astatine 1 constituent we were told it could beryllium dwarfism past skeletal dysplasia but nary of them were correct.

"We went for much scans successful London astatine 5 months and they told america she was precise sick and she mightiness not marque it. They said they could terminate it determination and we conscionable walked consecutive out. I knew she was thing special. Whenever she'd determination astir she'd bash it for a mates of days, past she'd spell quiescent successful my belly for a week - I knew she'd survive.

"They took her retired successful the amniotic sac to effort and not interruption her immoderate much than she already was. When I went into labour it was crushing her and breaking her adjacent more. When she was calved they couldn't number however galore breaks she had - she had her legs implicit her caput but she survived it. When a caregiver enactment a wristband connected her it broke her limb successful 2 places. She's smiley and blessed arsenic larry now. She's blessed and she's buzzing disconnected of life. She doesn't fto things signifier her."

Their tot inactive lone weighs 14lbs due to the fact that of her information - and the mean value of a two-year-old miss is astir 26.5lbs. The mates took their girl to their section infirmary erstwhile Natarlia broke her femur aft she threw herself and caught her limb successful September 2024 and were told she'd request an cognition for a metallic rod to beryllium inserted successful her leg. But mates decided to get a 2nd sentiment from a interaction astatine Great Ormond Street Hospital who said she wouldn't beryllium capable to header with the cognition owed to her 14lb size.

Natarlia was past transferred to Brighton Hospital wherever her limb was enactment successful a peculiar spica formed until she is large capable to beryllium operated on. Peter, who runs the concern with Nicole, said: "When you instrumentality into relationship that determination are 3 types of this - mild, mean and terrible and Natarlia was the apical extremity of severe, the information that she hasn't had a interruption successful 2 and fractional years is unreal. But this interruption is simply a footwear successful the teeth."

Nicole said: "She won't past an cognition with however anemic she is close present but she needs 1 connected her leg. After speaking with GOSH and Brighton Hospital they said there's nary mode she could header with having bolts and rods enactment successful her leg. Brighton Hospital was large and they enactment her successful a spica formed wrong 2 hours and we were location the adjacent day. The limb that's conscionable breached volition present astir apt beryllium her weakest bone."

Natarlia has to person infusions to fortify her bones and painkillers each 8 weeks to woody with the symptom but her parents don't presently cognize what the aboriginal holds.

Peter said: "It's hard to reply those questions. We person to unrecorded 1 time astatine a time. Even the specialists can't archer america what the aboriginal volition clasp - we person to unrecorded for the day. She's inactive lone 14lbs truthful she can't person the op astatine the infinitesimal with the information she has. The bigger she gets, the safer she gets. It's an aggravated surgery."

The parents person started a GoFundMe page to rise wealth for a padded country for Natarlia truthful she tin play safely. Nicole said: "We're ever disquieted if idiosyncratic bumps into us. We person to ticker bumps successful the roadworthy erstwhile driving. It's ever been maine and Peter and we haven't had overmuch support. My twins can't tally astir the location anymore arsenic we're disquieted they mightiness bump into Natarlia. We're trying to get assistance for this padded country for her truthful she tin play without worry."