Saving Scarlett: How one family is turning to the community for life-saving help

Scarlett Hicks is described arsenic a happy, cheerful and playful three-year-old girl. But each time she fights for her life.

She battles generalized epilepsy, autism, planetary improvement delays, and a uncommon familial mutation called BRAT1

It’s a mutation her mother, Jas Hicks, discovered was terminal by doing probe online alternatively of proceeding it from doctors erstwhile Scarlett was diagnosed.

“I fought for answers,” Hicks said. “I looked astir and I called them backmost due to the fact that they weren’t responding.

“We planned our daughters ceremonial due to the fact that we weren’t getting answers.”

Most radical with the BRAT1 cistron person died successful infancy according to a lawsuit study signifier the nationalist room of medicine.

Scarlett has antecedently had upwards of 90 seizures a day, but medicine has helped immoderate implicit the past small bit.

It’s a concern that has near her household of 5 with thing but tears and hope.

“There were galore nights wherever she would beryllium sleeping and the seizure camera would beryllium connected her and I’d beryllium watching the seizure camera and I’d conscionable beryllium crying portion she was sleeping due to the fact that that was the lone clip I could cry,” Hicks explained.

Scarlett’s household accidental they were denied fiscal assistance from the Saskatchewan Ministry of Health erstwhile they were forced to spell to Toronto for treatment.

Now, the household is selling idiosyncratic items and fundraising wealth for a $250,000 travel to the United States for proceedings treatments.

The household has held aggregate fundraising lawsuit nights and soundless auctions to assistance with costs. A GoFundMe page has besides been acceptable up for the family.

“The authorities truly isn’t helping truthful the lone mode that I person assistance is done the community,” Hicks said.

Tiffany Hoffman is simply a household person and a fundraising organizer. Her girl Amelia is Scarlett’s champion friend.

“It’s honestly the cutest happening ever the mode they play together,” Hoffman said. “After each the diagnosis’ and everything it’s conscionable benignant of been similar ‘no we don’t privation to spot Scarlett go.’ She’s portion of our household now. We’re going to bash what we tin to effort and rise this money.”

So acold they person raised $16,000 and accidental they are inactive looking for the airy astatine the extremity of the tunnel.

“You get adjacent conscionable similar a five-dollar donation and it’s conscionable similar 1 measurement person to the adjacent goal,” Hoffman said.

Hicks said she is highly grateful for the enactment her household has received truthful far. The acquisition has besides been a accidental for Hicks to conscionable caller radical and assistance others going done a akin journey. She said it is simply a accidental to bash more.

“This is my beingness and close present I americium warring for my daughter,” Hicks said. “The lone mode she tin combat is by waking up successful the greeting and pushing through.