THE parents of a two-year-old miss person been near heartbroken aft discovering the information down their daughter's receptor corruption and present she has conscionable days to live.
Florence Prideaux-Godwin was a seemingly blessed and steadfast toddler who looked to beryllium suffering from a terrible receptor corruption past May.
Tragically, tests person since confirmed that the tot's achy earache was caused by an untreatable cancer.
The household from Ilfracombe experienced their child's shocking diagnosis of signifier 3 rhabdomyosarcoma.
Doctors tried to dainty the uncommon benignant of brushed insubstantial crab with chemotherapy and radiotherapy but earlier this period a scan confirmed the worst.
Her parents, Dan Godwin, 40, and Rebecca Prideaux, 32, received the quality that a tumour successful the two-year-old's receptor had dispersed to her brain.
They've been told to marque arsenic galore memories arsenic they tin unneurotic with the crab believed to beryllium untreatable.
With aesculapian approval, the parents who person a five-year-old girl and duplicate three-year-old boys person arranged a travel to Butlins, Minehead.
Dan, a dad-of-five, said: "She is starting to get a spot shaky and suffer her equilibrium a small spot present and again, but she is inactive laughing, smiling and playing. Our program is to walk arsenic overmuch clip arsenic imaginable with her."
Florence was calved two months premature and spent the archetypal 2 months of her beingness successful hospital.
However, since past she has enjoyed a steadfast and blessed beingness up until processing earache past May.
Dan recalled: "We noticed she had a somesthesia and she was playing with her ears. We took her to A&E astatine North Devon District Hospital and it was confirmed she had an receptor infection. She was prescribed antibiotics and we came distant happy."
A fewer days later, the parents noticed Florence playing with her ears again.
She pulled retired thing that Dan could "only picture arsenic looking similar a tegument tag" and rushed her consecutive backmost to A&E.
After his girl was prescribed stronger antibiotics, the brace were blessed to instrumentality home.
But a fewer days later, Rebecca noticed her child's look looking "different" arsenic her near broadside "started drooping" similar she had suffered a "stroke.
Returning to A&E, Florence was transferred to an ENT specializer astatine the Royal Devon and Exeter Hospital wherever a process was carried retired to drain astir of the fluid.
Polyps recovered successful her receptor were sent disconnected for testing.
Loose Women prima sparks wellness concerns aft worrying infirmary sojourn
A week aboriginal she returned location but a time aboriginal she became unwell again and the determination was made to drain the remaining fluid from her ear. At the opening of June she was capable to spell location and seemed good until the extremity of the period erstwhile her health deteriorated.
Dan said: "We were backmost astatine the RD&E and doctors said to us, 'to beryllium honest, it's a mystery', arsenic they weren't definite what was going on. The adjacent day, connected July 1, the results from the polyps successful her receptor came backmost arsenic cancerous.
"We were told she had a tumour successful her near ear. Initially they thought it had dispersed to 1 of her lymph nodes, but past we were told that wasn't the case. Pretty overmuch consecutive distant she was started connected chemotherapy."
The attraction program for Florence was 9 courses of chemotherapy lasting astir 3 weeks each. She received alternating cycles of modular and past a proceedings chemotherapy.
Scans successful September showed the attraction was moving and the tumour was shrinking. In October, she spent 8 weeks astatine the University College Hospital successful London for proton beam therapy, a benignant of radiotherapy.
Florence finished her past people of chemotherapy astatine the opening of January and was fixed different advancement scan. However, this clip it was not bully news.
Dan, who has remained astatine location with their different children portion Rebecca has stayed by Florence's bedside successful hospital, said: "We had been precise affirmative and upbeat arsenic she had done truly good and had been superb passim it all.
"Florence had the evident broadside effects of chemotherapy specified arsenic losing her hairsbreadth and she was a spot up and down, but connected the full she was astonishing and was inactive playing and laughing.
"To look astatine her, isolated from not having hair, you would not person been capable to archer thing was incorrect with her. But past we were told the crab had dispersed from her near receptor to the backmost of her encephalon and that her cancer was present incurable.
"Initially we were told determination were a mates of options specified arsenic chemotherapy to prolong her beingness a small bit. Then a week later, past Thursday, we had different gathering with doctors and they said they were incapable to bash thing other for her and that she had days oregon up to weeks to live. I can't picture however it felt being told that news. It was astir apt 1 of the lowest debased points of my life."
Florence is present backmost location with her household and is inactive afloat of smiles arsenic usual.
Dan said: "We person been told to walk arsenic overmuch clip arsenic we tin with her making memories. We person been to look astatine children's hospice Little Bridge House successful Fremington wherever we volition walk a fewer days the week aft our sojourn to Butlins.
"We usually spell determination each May for our childrens' birthdays. Our squad of doctors person pre-warned Musgrove Park Hospital successful Taunton astir Florence successful lawsuit we request to spell determination portion we are away."
They are being helped to bask precious past moments with Florence acknowledgment to an online fundraiser that has been acceptable up by household person Callie Courtney Baxendale. It has truthful acold raised conscionable implicit £7,000.
Florence is said to beryllium inactive blessed and enjoying playing, but her small assemblage is present showing signs of the effects of her cancer. The online fundraiser acceptable up for the household is hoped to assistance them bash much amusive things with Florence portion she is capable to.
It is the 2nd fundraiser that has been organised for them. The first, which raised conscionable implicit £2,000, helped them financially aft having to halt enactment to attraction for Florence.
Dan said: "When we recovered retired the quality that Florence was terminal, different fundraiser was acceptable up to assistance america marque arsenic galore memories arsenic possible. The enactment we person had is unbelievable. We person been blown distant by it.
"We would besides similar to convey the unit astatine some Barnstaple and Exeter hospitals; they person been fantastic, arsenic person the assemblage nurses."
What is Rhabdomyosarcoma?
Rhabdomyosarcoma is simply a uncommon signifier of brushed insubstantial crab that is astir communal successful children nether 10-years-old.
It is much communal successful boys than girls with much children surviving puerility crab than ever before.
The benignant of tumour is the astir communal brushed insubstantial sarcoma successful children.
They tin make from musculus oregon fibrous insubstantial and tin turn successful immoderate portion of the body.
Symptoms include:
Typically, it is diagnosed by investigating the nonstop size of the tumour and whether it has dispersed to different parts of the body.
Treatment tin alteration but could see chemotherapy, country oregon radiotherapy.
Source: NHS