'Our 1-year-old was dismissed as just pale and ginger before doctors found deadly cancer'

Parents Jon and Danielle Love became acrophobic erstwhile their lad Myles became unwell successful September 2023 aft helium had stopped drinking oregon eating, felt bushed and insisted connected being carried everywhere

The household of a 1-year-old tot who assertion their child's symptoms were dismissed arsenic being "pale and ginger" person been near devastated aft medics discovered helium had stage-four cancer.

Parents Jon and Danielle Love became acrophobic erstwhile their lad Myles became unwell successful September 2023 aft helium had stopped drinking oregon eating, felt bushed and insisted connected being carried everywhere. 30-year-old Danielle made respective visits to her GP who told her that Myles was suffering with a microorganism and apt constipated.

When Myles' symptoms failed to improve, the mum-of-three took him to Cumberland Infirmary successful Carlisle, Cumbria, but claims her concerns fell connected deaf ears. Myles past had to acquisition a humor transfusion aft doctors discovered helium was anaemic, but Danielle inactive believed helium was unwell, peculiarly owed to his airy appearance. The mum claims a caregiver said that Myles volition 'always look pale' owed to his ginger hair.

However, tests aboriginal revealed that Myles had a tumour successful his abdomen and was diagnosed with stage-four neuroblastoma. Myles, present three, is successful remission but Danielle believes helium would've died if her household hadn't repeatedly pushed for answers. North Cumbria Integrated Care NHS Foundation Trust said they were atrocious the Love household weren't blessed with the attraction Myles received and that the main enforcement has offered a gathering with them.

Danielle, from Carlisle, Cumbria, said: "At first, Myles conscionable seemed a small spot unwell. He was truly tired, helium wasn't bothered with his toys, helium wanted to cuddle each the time. We took him to the GP who said helium had a virus, but helium didn't person immoderate cold-like symptoms oregon a cough. Over the adjacent week oregon so, helium inactive wasn't doing large astatine all. He past conscionable wholly stopped walking. He wanted to beryllium perpetually held. He stopped eating and we had to usage the Calpol syringes to springiness him bits of water.

"We went backmost to the doctors and they thought helium conscionable had constipation and gave america laxatives for him. Something conscionable said to america 'something's not close here' but we kept getting palmed off. We decided capable was capable and took him to hospital. I explained successful A&E that I knew thing wasn't close with him. I asked if determination was immoderate mode they could instrumentality his bloods. Obviously I wouldn't person asked that question if I didn't judge thing was earnestly wrong.

"The effect I got was 'you brought your kid to A&E due to the fact that something's not right?' The reply I got was 'doctors don't usually similar to instrumentality bloods for children this small'." Danielle claims she rang the infirmary 5 times implicit concerns regarding Myles' wellness but didn't person a response.

Blood tests revealed that Myles was anaemic and helium underwent a humor transfusion, but the pursuing time Danielle rushed her toddler backmost to A&E owed to his 'pale' appearance. Danielle said: "I thought helium inactive looked truly pale. I'm not anserine I cognize that radical with ginger hairsbreadth bash person fairer tegument but helium conscionable seemed paler than normal.

"I went to the reception table and spoke to the caregiver astir him looking paler than accustomed and she said 'he's ginger, he's ne'er going to look afloat of colour, helium is going to look pale.' I was precise taken aback. It got to the constituent wherever I was questioning myself and reasoning 'am I conscionable being an overprotective mum?'."

After taking Myles backmost to hospital, the toddler was rushed to Royal Victoria Infirmary successful Newcastle erstwhile doctors recovered a tumour successful his abdomen. There, helium was diagnosed with signifier 4 high-risk neuroblastoma and began an intensive people of treatment. Danielle said: "I couldn't judge what we were being told astir however atrocious things were. We were wholly heartbroken.

"We went from being not believed astatine each to being told if we'd got determination immoderate later, we would've mislaid him. They didn't cognize if he'd marque it done the archetypal period of treatment. They had to commencement chemotherapy beauteous overmuch consecutive away. This has been worse than hell. Being successful a country seeing your children unresponsive successful ICU, you're perpetually reasoning 'am I going to suffer my child?'."

Luckily, Myles' crab is present successful remission and Danielle is present urging different parents to persist if they consciousness dismissed by wellness professionals. Danielle said: "If we hadn't pushed astatine the start, we would've mislaid our child. How tin we ever spot them again? If we'd listened to them, Myles wouldn't beryllium present close now. I was wholly dismissed. That's wherefore it's truthful important if you cognize your kid isn't close to propulsion arsenic overmuch arsenic possible. The parents are the experts of their ain child."

Danielle and Jon issued a ceremonial ailment against Cumberland Infirmary, managed by The North Cumbria Integrated Care NHS Foundation Trust, successful August. A spokesperson for North Cumbria Integrated Care NHS Foundation Trust, said: "We are atrocious that the Love household were not blessed with the attraction their lad received portion nether our attraction astatine what indispensable person been a precise traumatic clip for them.

"When a tumour was discovered, Myles was instantly transferred to the RVI which is the close and due enactment for this diagnosis. We person emphasised to our colleagues the value of listening to the concerns of families and we are atrocious if they consciousness that our levels of connection fell beneath the expected standard. The household person made a ailment to the Trust and our main executive, responded successful penning to the household offering a further meeting."

A fundraiser has launched to assistance the Loves wage for immoderate question and accommodation costs needed for Myles' aboriginal attraction and care.